Information and Support

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On this page you can find a variety of sources of information and support that we've found useful

• About Parkinson's

• Find Support Near You - NHS

• NICE guidelines

• Medication

• Deep Brain Stimulation (DBS)

The amount of information available can be overwhelming. The three links below provides a good overview.

• Parkinson's UK

  Homepage | Parkinson's UK (parkinsons.org.uk)

• The Cure Parkinson's Trust About Parkinson's - Progressive Neurological Disease - Cure Parkinson's (cureparkinsons.org.uk)

• National Health Service (NHS) Parkinson's disease - Living with - NHS (www.nhs.uk)

Tracey Smith, Senior Parkinson's Nurse, Lister Hospital, Stevenage.

You may find there are community and Hospital based services in your area. This is the case in Hertfordshire, I work for East and North Herts NHS Trust (Acute Hospital setting and do clinics across East and North Herts and support inpatients with Parkinson's).

There are also services that cover West Herts both Acute and community settings. All patients with a diagnosis should have access to a Nurse specialist for education, support and medications management.

Which service you have access to will depend on the individual service structure. NICE Guidance states everyone suspected of having Parkinson's should be referred to a specialist for assessment and diagnosis, that can be Neurology or a care of the elderly specialist.

As well as local services we have links with specialist centres and we work with them collaboratively for example:

Movement disorders : University College London Hospitals NHS Foundation Trust (uclh.nhs.uk)

Our Neurosurgery department provides expert assessment, diagnosis and treatment for patients with complex neurological disorders and head injuries. | CUH

There are three further links giving more specific information on care and treatment available.

• National Institute for Health and Care Excellence (NICE) Overview | Parkinson’s disease in adults | Guidance | NICE

• Medication Drug treatments for Parkinson’s – Parkinson's shop (parkinsons.org.uk)

• Deep Brain Stimulation Deep brain stimulation | Parkinson's UK (parkinsons.org.uk)

Is there anything you would like to add to this page? Let us know by contacting us